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        <title>KidneyLyfe — KidneyLyfe</title>
        <link>https://www.kidneylyfe.com/</link>
        <pubDate>Mon, 20 Apr 2026 22:58:41 +0000</pubDate>
        <language>en</language>
            <description>KidneyLyfe — KidneyLyfe</description>
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        <title>Travel w meds: dosing</title>
        <link>https://www.kidneylyfe.com/discussion/1545/travel-w-meds-dosing</link>
        <pubDate>Mon, 19 Jan 2026 14:31:37 +0000</pubDate>
        <category>General</category>
        <dc:creator>Karin</dc:creator>
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        <description><![CDATA[<p>Hi,</p><p>I am a frequent traveler and I often even travel across time zones. When I dosed insulin this was very complicated since my long acting insulin really needed 24 hrs between doses and the meal time insulin was used right before eating. It took me a day or so to adjust and it often posed issues. W my transplant meds I try to adjust my schedule as well so I keep my tac levels stable. This means I should dose every 12 hrs and I often do a two day transition moving the dosing a few hrs each day to allow for this cadence yet letting me sleep! </p><p>how do you do it?</p>]]>
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        <title>Canada Transplant Games</title>
        <link>https://www.kidneylyfe.com/discussion/1585/canada-transplant-games</link>
        <pubDate>Tue, 17 Mar 2026 17:39:04 +0000</pubDate>
        <category>General</category>
        <dc:creator>Laszlomark</dc:creator>
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        <description><![CDATA[<p>Hello! Is there anyone on here going to the Canada Transplant Games this July?</p><p>July 5th - 11th in Sherbrooke, Quebec.</p><p><br /></p><p>I will be going as part of my doctoral fieldwork but also look forward to meeting others.</p>]]>
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        <title>Transplant Games and ATC</title>
        <link>https://www.kidneylyfe.com/discussion/1579/transplant-games-and-atc</link>
        <pubDate>Tue, 10 Mar 2026 16:43:18 +0000</pubDate>
        <category>General</category>
        <dc:creator>Dom</dc:creator>
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        <description><![CDATA[<p>Hello friends!</p><p>Just wanted to check in and see if anyone here is planning on attending transplant games this year or the ATC conference? </p><p>For reference:</p><p>Transplant Games - June 18th-23rd in Denver, Colorado </p><p>ATC (American Transplant Congress) - June 20th-24th in Boston, Massachusetts</p><p><br /></p><p>I will be at the transplant games this year and would love to connect/meet up with anyone who might be going!</p>]]>
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        <title>Managing Anxiety Around Cold/Flu Season Around the Holidays</title>
        <link>https://www.kidneylyfe.com/discussion/1504/managing-anxiety-around-cold-flu-season-around-the-holidays</link>
        <pubDate>Mon, 24 Nov 2025 17:23:44 +0000</pubDate>
        <category>General</category>
        <dc:creator>LaVise0325</dc:creator>
        <guid isPermaLink="false">1504@/discussions</guid>
        <description><![CDATA[<p>The holiday season can bring extra anxiety.  What is one thing helping you stay calm and protect yourself from getting sic?</p>]]>
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        <title>Im Back From Traveling!!!</title>
        <link>https://www.kidneylyfe.com/discussion/965/im-back-from-traveling</link>
        <pubDate>Sun, 15 Oct 2023 21:19:39 +0000</pubDate>
        <category>General</category>
        <dc:creator>fern22</dc:creator>
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        <description><![CDATA[<p>Wow. After a lovely time in San Diego; attending the Alport Connect event with the Alport Syndrome Foundation, I am back home with lots of new knowledge and new friends in the community. </p><p>Since this was my first time traveling on a plane/ in an airport in 3 years, I learned a lot about myself and what I need to make long travel days successful. </p><p>Did you know you can claim that your water is for medical needs and all they do is test it for fumes? </p><p>One big thing that I wanted to share is how traveling can make us feel ungrounded. We are literally moving around and going through a bunch of different processes, theres a lot of different energy around us and within us. We are out of our usual routine and schedule. And with new places, we are constantly being stimulated with new information, new sights, smells, new faces, new sounds, everything is being processed. </p><p>What do you do to make traveling easier for you? What practices do you use to remain centered and calm and grounded while traveling?</p>]]>
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    <item>
        <title>The Power of Advocacy with Jeanmarie and her transplant journey</title>
        <link>https://www.kidneylyfe.com/discussion/1445/the-power-of-advocacy-with-jeanmarie-and-her-transplant-journey</link>
        <pubDate>Tue, 16 Sep 2025 23:16:43 +0000</pubDate>
        <category>General</category>
        <dc:creator>LaVise0325</dc:creator>
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        <description><![CDATA[<p>When I think about strength in the transplant community, <a data-username="Jeanmarie" data-userid="126" rel="nofollow" href="https://www.kidneylyfe.com/profile/Jeanmarie">@Jeanmarie</a>  is one of the first people who comes to mind. She has lived with lupus nephritis, received a kidney that gave her  20 more </p><p>years of life, and now faces the reality of needing another. Even with so much on her shoulders, she continues to advocate, speak out, and remind the world that our journeys are about more than just survival &mdash; they&rsquo;re about resilience, hope, and purpose.</p><p>For those of us who have been through transplant, her story touches something deep inside. We know what it feels like to carry gratitude and fear all at once. Jeanmarie shows us that even in the hardest moments, it&rsquo;s possible to keep pushing forward with courage and grace. Let&rsquo;s flood her with the same love and support she has poured into all of us.</p><p><a href="https://transplantlyfe.com/education/podcasts/lyfetalks" rel="nofollow noreferrer ugc">Podcasts &mdash; TransplantLyfe</a></p><p><br /></p><div>
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    <item>
        <title>Traveling</title>
        <link>https://www.kidneylyfe.com/discussion/1349/traveling</link>
        <pubDate>Tue, 13 May 2025 23:32:55 +0000</pubDate>
        <category>General</category>
        <dc:creator>LaVise0325</dc:creator>
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        <description><![CDATA[<p>Continuing the discussion from tonight&rsquo;s support group </p><p>Any advice for flying, cruising, or road-tripping while protecting your transplant health?</p>]]>
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    </item>
    <item>
        <title>Living In the Now</title>
        <link>https://www.kidneylyfe.com/discussion/1398/living-in-the-now</link>
        <pubDate>Tue, 08 Jul 2025 23:15:11 +0000</pubDate>
        <category>General</category>
        <dc:creator>LaVise0325</dc:creator>
        <guid isPermaLink="false">1398@/discussions</guid>
        <description><![CDATA[<p>Tonight in support group, we focused on the &ldquo;here and now&rdquo; what&rsquo;s currently going on in our lives.</p><p>It was a great reminder to pause and reflect on the present.</p><p><br /></p><p>So let&rsquo;s open it up:</p><p>What&rsquo;s happening in your life right now?</p><p><br /></p><p>Whether it&rsquo;s planning a trip, organizing a living donor awareness event, or celebrating a birthday or anniversary ,  we&rsquo;d love to hear about it. Big or small, your moments matter.</p>]]>
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    </item>
    <item>
        <title>What Does Independence Mean to You?</title>
        <link>https://www.kidneylyfe.com/discussion/1394/what-does-independence-mean-to-you</link>
        <pubDate>Tue, 01 Jul 2025 18:25:19 +0000</pubDate>
        <category>General</category>
        <dc:creator>Jeanmarie</dc:creator>
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        <description><![CDATA[<p>For many of us living with a chronic illness or transplant, independence means freedom to live life our way&mdash;one choice, one step, one breath at a time.&nbsp;</p><p>For me, my transplant gives me the freedom without dialysis, so I can travel without being tied to a dialysis machine. </p><p>What&rsquo;s your definition of independence? Please share it in the comments and let&rsquo;s celebrate our strength together.&nbsp;</p>]]>
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    <item>
        <title>Will you be at WTC in SF in August? Come say hi!</title>
        <link>https://www.kidneylyfe.com/discussion/1390/will-you-be-at-wtc-in-sf-in-august-come-say-hi</link>
        <pubDate>Mon, 30 Jun 2025 18:46:57 +0000</pubDate>
        <category>General</category>
        <dc:creator>JamieHaight</dc:creator>
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        <description><![CDATA[<p>We&rsquo;re so excited to be part of this year&rsquo;s World Transplant Congress. Will anyone be attending? We hope so! We discovered that there is a special rate for transplant patients, donors, and care partners (I believe around $50-$75), so if you are in the SF area, come join us!</p><p>Here&rsquo;s where you can find us:</p><ul><li><strong>Booth #1203</strong>: Stop by to meet us and grab some goodies.</li><li><strong>Speaker Session</strong>: Don&rsquo;t miss Karin, our founder, on stage Monday, Aug 4 at 8:15am PST</li><li><strong>Poster Presentations</strong>: We&rsquo;ll be sharing posters on peer support, transplant education, and storytelling&mdash;Monday &amp; Tuesday at 3:30&ndash;4:30pm</li></ul><p>If you&rsquo;re attending, drop a comment and let us know&mdash;we&rsquo;d love to connect in person!</p>]]>
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