I don't know what's worse, waiting for the phone call that they found a liver for you, or knowing there is one and waiting for the scheduled date? It is driving me nuts.

Hope everyone can enjoy the beautiful day,

Andreas

I am new to your forum. I got my kidney transplant 4 weeks ago! I am feeling amazing. I was super lucky since I was 95% antibodies before transplant and they found a diseased donor for me. My creatinine is .09 now and everything is good except they found antibodies they are currently giving me ivig and plasmaphoresis. I just wanted to know if any of you have gone through this and how are you right now also my native kidneys were still working before transplant and I had started dialysis 2 months prior to the surgery but I’m still spilling protein which I would think make sense since the old kidneys were doing that before. Has any one had an issue with this as well? Hopefully I get some answers from you guys.

Thanks for any replies in advance.

Kim

Just an update as I begin my 2nd month with my new kidney (RC) Its been an interesting ride and I had to put in a wound vac because my incision became slightly infected, was put on on an antibiotic called levaquin. Did a 10 day regiment of that. Just completed it yesterday. Last night around dinnertime I was having some burning sensation while i tried to urinate thought it was a uti, but i saw my urologist to get my stent removed, and he said thats pretty normal when you have a stent in for over a month, so we'll see if the sensation does subside today or tomorrow afternoon, so again never quite easy, but overall the kidney itself is waking up and doing well. creatinine is at 1.7 and my tac levels are at 9.8 so i take 3 in the am and 3 in the pm. I have a visiting nurse that comes once a week to do my wound change for my vac, it does look like i'll be here in the NYC for a bit longer as i completely recover from the vac and wound heals up completely.

end of stream of consciousness.

Thanks for everyone who continues to keep my spirits up with calls and texts.

-Alex

March is Colorectal Cancer Awareness Month.

Colorectal cancer is no longer just a concern for older adults—1 in 5 cases now occur in people under 55. Early detection is key. We should all be protecting our digestive health as we strive to thrive with our

♻️ #GiftofLife ✅️ .

I'm sharing an informative video (recording of a webinar) by Medstar Health (I belong to this hospital system).

Stay healthy and excited for springtime!

Hope you are all doing well.

I'm 3 1/2 LT, and I am having excruciating joint pain behind my knees, wrists, and body aches.

I just want to check if anybody has experienced the same thing, because it has already been 3 years, and now the pain is really bad.

I'm not sure if this is a side effect of Tacrolimus or if I should check something else.

Thanks

Lifestyle Management

Medication Regimens

Healthcare Navigation

Innovation in Medicine

Our first webinar, “A Practical Guide to Achieving Your Health Goals,” will be on Tuesday, January 20th.

To learn more or sign up, just go to the Webinars section under the Education tab.

I wanted to personally invite you to this month's webinar happening on Tuesday, February 17th at 5:30 PM EST. I will be giving a short talk on how tracking our medications and symptoms can give us a better picture of our overall health and equip us to be better self-advocates.

It will be a brief session with about 15 minutes of presentation and 15 minutes of open Q and A. My goal is to talk about the reality of being a patient and to share simple ways to stay organized and feel more confident when speaking with your care team.

I would love to see you there and hear about your experiences as well :)

Please feel free to bring any questions!

Hope you can join!

Registration: Webinars - TransplantLyfe or Webinars - KidneyLyfe

I decided to recount my skin cancer experiences, lessons learned, and advice for other organ transplant recipients in a new blog post for TransplantLyfe:

https://www.transplantlyfe.com/education/blog/grateful-but-still-human

If anyone else has experience with this aspect of living with a transplant, feel free to share below.