for some reason i have been trying to put all this questions into something i am just trying to figure out, would love if you can provide opinions and feelings here.

https://forms.gle/nUrDBW3FCCTc9NjeA

had my Follow Up today and I found out I won’t be meeting with my Surgeon anymore but a Hepatologist I’m familiar with, he supervised my Abdomen getting drained

I met with the same Psychologist again afterwards and told her how I requested to speak with her again while I was admitted but was Denied

She said she heard about that later on but I was discharged…

Every heart month I find myself reflecting back on the journey that brought me here. It always stirs up some complicated feelings; grief, thankfulness, awe. If you feel yourself having the same feelings about your transplant journey, you should totally check it out!

Male, 57, ALD, surprisingly, I wasn't a big drinker, except in my twenties.

Celiac and vitiligo are the autoimmune diseases that I was diagnosed with about 16 years ago. I'm used to sudden, necessary lifestyle changes. -

We, my wife and I, finally called the hospital to schedule my liver transplant for May 2026.

My wife will be my living donor. It has been a struggle for me to agree to that.

There are still so many unanswered questions. I work with my team and therapist. We have a small business that relies on my wife and me to be present and working.

In the last few years, we took up recreational running, and now I've started running in the gym and lifting weights. My doc says I need to lift to maintain muscle. Sometimes I get too competitive and run faster and lift more weight than my doctor would approve of.

I want to be in the best shape I can be again.

I hope recovery will not take more than 3 months before I can return to my desk. My wife gets scared when I speak of potential risks and side effects.

Would love to hear what the real post-transplant life will look like.

Has anyone been able to run again post-transplant and live a (somewhat) normal life?

Thanks for reading this!

I had to remind others that my diagnosis doesn't define me,

How did you hold on to who you are after tarting dialysis

Head over to our support groups tab (you can find it under education) and sign up now to make sure you don't miss a thing. This is a different link than previous meetings so you'll have to make sure to RSVP to the 2026 dates to get the updated zoom link. Open to all types of transplants all over the world.

Here's to another year of conversations, guests and growing community together!

To all of you who celebrate but also to those who are alone, afraid or just not in the mood!

I know these holiday times can be tough, stress of family perfection and presents for everyone - and then add uncertainty of health, financials (at least in the US), work and relationships- makes for a stressful experience. Historically I have often opted to escape - away from those who love me, after connecting around a meal or drinks, but then it is hard for me to relax or even relate to the often mundane conversation that seems so irrelevant to me… but with a young child it makes it both easier to 1) center the conversation on her to avoid conflict 2) do activities that she loves that often involve physical exhaustion or mental work… thank you Liv, for always saving me from myself and thank you transplant friends for hopefully understanding?

Above all, I HOPE YOU MAKE IT! 💙💚♻️✅️

For me, the turning points were Cirrhosis, Covid, and Cancer.

Those three “C” words entered my life in 2019 and permanently changed the way I see the world and my own body. They forced me to slow down, to question, and to become deeply intentional about my health and my choices. As we approach 2026, just two days away, I find myself reflecting on how much has changed since I first joined this group.

There is far more information now than there was then, and at one point I needed to step back. I took the time to look at myself from multiple perspectives and learned just how vital critical thinking is, how essential it is to advocate for yourself within the medical system, and how important it is to honor your own truth while navigating complex care.

Today, I want to open a conversation.

Have any Canadian transplant recipients faced medical challenges or barriers at the provincial level related to being unvax*inated, either before or after transplant? If so, what did that look like for you?

I am an unvax*inated transplant recipient, now five years post-transplant, with no complications. I am healthier than I have ever been and have not experienced rejection issues, or any other health related issues. This is simply my lived experience, NOT a statement for everyone, but an honest account of my journey.

If there are others here with similar experiences, I would truly value hearing your story.

Thank you for sharing this space with openness and respect.

<3