KidneyLyfe β€” KidneyLyfe https://www.kidneylyfe.com/ Mon, 20 Apr 2026 22:56:04 +0000 en KidneyLyfe β€” KidneyLyfe I hope you make it!! πŸ’™πŸ’š https://www.kidneylyfe.com/discussion/1522/i-hope-you-make-it Sat, 27 Dec 2025 12:19:44 +0000 General Sdey0522 1522@/discussions @Everyone: Best wishes and prayers for a fantastic 2026! May all of you stay healthy, happy, and blessed.πŸ™ πŸ‘

Above all, I HOPE YOU MAKE IT! πŸ’™πŸ’šβ™»οΈβœ…οΈ


]]> Doubt ! https://www.kidneylyfe.com/discussion/1510/doubt Thu, 27 Nov 2025 07:50:49 +0000 Kidney vishnumurali369 1510@/discussions My kidney transplant was 3 years ago. However, I now have high protein urea, and there is foam in my urine. Nevertheless, my creatine, potassium, and sodium levels are fine. The doctor recommended a biopsy. Has anyone had a situation like this? Does anyone know the reason?

]]> Tim Andrews https://www.kidneylyfe.com/discussion/1479/tim-andrews Wed, 29 Oct 2025 14:01:01 +0000 Kidney Karin 1479@/discussions Sadly the xenograft that lasted almost 9 months is now removed. I believe this was the longest xenograft since the 1964 chimpanzee graft. In interviews, Tim says that this still gave him tine off dialysis and he appreciated this very much.

https://www.cnn.com/2025/10/27/health/pig-kidney-transplant-tim-andrews

]]> CellCept (mycophenolate mofetil) https://www.kidneylyfe.com/discussion/1417/cellcept-mycophenolate-mofetil Wed, 06 Aug 2025 15:30:59 +0000 Liver Alexc1972 1417@/discussions Hello,

I'm a 2 1/2 yr liver transplant patient, and I just had my yearly visit this week.

My lab results two weeks ago came back like a Christmas tree (all colorful)

I got COVID-19 a month ago, so I thought my lab results were off because of it. The BUN/Creatine levels were very high.

So, my doctor dropped the Cellcept from my daily meds (I was taking 500mg twice a day), but she said that it's because I'm already 2 years after my transplant and everything is fine. But when she said everything is fine, I asked about the kidney situation. She said not to worry because it was not that bad (ONE OF THE REASONS I ENDED UP NEEDING A LIVER TRANSPLANT WAS BECAUSE THE DOCTORS KEPT SAYING THAT WAS EVERYTHING FINE, JUST CHANGE YOUR DIET), and never paid deep attention to my problem until was too late.

So, I believe that the high BUN/Creatinine is a concern regarding my kidneys, and I feel that it is my responsibility to ensure it is closely monitored. Now, I have the fears of organ rejection because of the medication modification.

I just felt that after the liver transplant, the transplant doctors are only concerned if the liver is healthy and everything else is the other doctors' problem, making it hard to go along with a peace of mind.

It is stressful, even though this is the first time I have a scare after my transplant.

]]> cyclosporine side effects https://www.kidneylyfe.com/discussion/1442/cyclosporine-side-effects Sat, 13 Sep 2025 00:03:50 +0000 General mrmdip 1442@/discussions hey has anyone ever taken cyclosporine and had any side effects my doctor wants me to start it tomorrow with my bk virus just curious if anyone had any history with it

]]> THC use after liver transplant https://www.kidneylyfe.com/discussion/948/thc-use-after-liver-transplant Sun, 17 Sep 2023 19:15:27 +0000 Liver Rahul 948@/discussions Hi I had a liver transplant approximately 2 years ago and now I am taking ediables for THC. How bad is it or can I continue using it sometimes.

]]> What transplant-specific medications are you taking? https://www.kidneylyfe.com/discussion/451/what-transplant-specific-medications-are-you-taking Thu, 12 May 2022 21:45:19 +0000 General DonnyC 451@/discussions What immunosuppressive medications & dosages are you taking right now? Have you had to change these medications and/or dosages and why? Include your organ and years post-transplant for your most recent transplant. Would like to get an idea of what you guys are on.

]]> Biopsy after kidney transplant https://www.kidneylyfe.com/discussion/1155/biopsy-after-kidney-transplant Sun, 16 Jun 2024 21:57:31 +0000 Kidney Cdub 1155@/discussions My son had a kidney transplant three days ago. Creatinine has been slowly increasing every day and they want to do a biopsy tomorrow.

Is he losing the kidney?

]]> Missed morning meds https://www.kidneylyfe.com/discussion/1246/missed-morning-meds Wed, 20 Nov 2024 14:19:49 +0000 Kidney Anguhhlee 1246@/discussions My husband got the call that the hospital had a kidney for him after 4 years of waiting on November 12 2024. He got discharged November 15 and yesterday (the 19th) we were officially 1 week post op. We'll i went to go give him his night time meds and noticed, he didn't take his morning dose. Of course, I called the after hours number immediately and am waiting to hear back from them. But he's also been VERY tender especially since the doc pushed on the area on Monday for his first follow up apt. Just looking for anyone who has been in this situation? It's been very nerve racking for me. And I'm so afraid this missed dose is really going to hurt him.

]]> AFTER TRANSPLANT WHAT TO KNOW AND ACTIONS TO TAKE WITH LINKS TO PURCHASE RELEVANT PRODUCTS https://www.kidneylyfe.com/discussion/1259/after-transplant-what-to-know-and-actions-to-take-with-links-to-purchase-relevant-products Wed, 11 Dec 2024 00:45:13 +0000 General Nancysueh 1259@/discussions https://docs.google.com/document/d/1LYpZdEk265fHYGthH7DivDspvRyNVezA989bR4jVrPs/edit?usp=sharing


This is a link to a google drive document of all the information I have learned in the last 3 months since my Kidney transplant. Feel free to let me know any errors or things you think can be added. It is a work in progress. Thank you

Nancy

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