KidneyLyfe — KidneyLyfe

Tips for New CKD Patients

TransplantGr8ness — Thu, 08 Jan 2026 19:45:22 +0000

Hello everybody,

I'm not sure if this has already been discussed but I was wondering if we could compile our best tips for people new to CKD. What are the most helpful tips in your opinion that you would give to someone who is new to CKD?

Bone health

TiaBean — Wed, 01 Apr 2026 20:18:12 +0000

I recently found out I have osteoporosis. Most likely from my medication regime. I am going to try yoga, new medication, and small weight training. Problem with me is I have no hunger or thirst cues. The docs are all stumped. This is frustrating. Anyone have bone issues?

Dialysis Modality Education

Dom — Fri, 12 Dec 2025 18:14:06 +0000

I am curious to find out what your experience was with learning about the different types of dialysis?

If you crashed into dialysis, how long before you heard about different modalities?

Did anyone feel like they received good education about the different options before starting dialysis?

Happy World Kidney Day!

Dom — Thu, 12 Mar 2026 13:23:58 +0000

How is everyone celebrating today!? Feel free to drop your thoughts in this thread!

I'm excited to see all the social media videos and posts being shared today 😊

CKD and Emotional Resilience

LaVise0325 — Mon, 05 Jan 2026 19:56:42 +0000

What emotions do you find most challenging while living with CKD? (Anxiety, Frustration, sadness or irritability) What would tell someone who has been newly diagnosed about protecting their emotion well-being?

"Inside Dialysis: The Hard Truths & Hidden Strengths"

LaVise0325 — Tue, 22 Jul 2025 22:11:23 +0000

Alex , Emmitt, and I recently had an honest conversation on the LyfeTalks Podcast titled “Inside Dialysis: What I Wish I Knew Earlier.” We opened up about our personal journeys—sharing what dialysis was really like, the challenges we faced, and the lessons we learned along the way.

If you're on dialysis, waiting for a transplant, or supporting someone who is, this episode offers real insight and encouragement. We hope it helps others feel seen, supported, and better prepared. We would love to hear your thoughts.

Take a listen and feel free to share with anyone who could benefit. 💚 https://transplantlyfe.com/education/podcasts/lyfetalks

CKD and Life Balance

LaVise0325 — Thu, 29 Jan 2026 22:42:39 +0000

For those living with CKD or receiving dialysis treatments, what changes have you experienced in your daily life, and what has helped you adapt?

What are some questions people should be making their doctors?

cuevasyarieli — Mon, 19 Jan 2026 00:02:42 +0000

As part of my goals for educating people about kidney disease is teaching some basics questions they should be asking their doctors when starting their kidney journey (or even before it starts). recommend me some questions I could pass on to people.

Example for non-CKD patients (during annual check up): make sure their kidney function is getting tested.

Introducing Myself!

cuevasyarieli — Sat, 10 Jan 2026 19:58:38 +0000

Hi! My name is Yarieli Cuevas (Yari for short). I'm 29 years old and I was diagnosed with CKD when I was 3 years old. Between the ages of 7-11, I went through in clinic hemodialysis, PD and a transplant.

The transplant lasted 11 years (2008-2019) and I've been back on dialysis ever since. Started back in center and since 2020 I've been doing home hemo. While on dialysis I've also been waiting for a new kidney.

Since my teen years I've been a big advocate for kidney patients specially for the latino/ hispanic community. I also love working with patients doing the transition from pediatrics to adult or just younger patients that need someone to talk to.

I have a full time life, a husband, my own home, 4 pets and I love to travel! If I'm able to do all this I'm sure others can too.

I'm looking forward to sharing my experience with anyone who needs it, please feel free to write to me at any moment.

(📷️: collage of me through the years)

6 Months Kidneyversary

jdanishevsky — Fri, 09 Jan 2026 16:10:16 +0000

Today marks my six-month kidneyversary—an important milestone in this journey, and what a journey it has been. It all began on 7/9/2025, around 11 a.m., while I was at home having my coffee and working, as usual, when I received the call. In that moment, everything changed. I was excited, nervous, hopeful, and honestly a bit in disbelief that the time had finally arrived. I told my coworkers, gathered my family, and together we headed to the hospital to take this life-changing next step.

The doctors and staff were absolutely incredible—I cannot speak highly enough of their care and compassion. After surgery, I was home in just under a week, with my family literally by my side, even sharing the same room, as the recovery process began. Along the way, there were a few bumps in the road: a stent removal, fluid buildup that needed draining, a drain placement that led to a hematoma, a minor rejection caught and treated immediately, and even a short hospital stay due to a fever and infection. These were challenges, but I have no complaints—only gratitude. Thank God.

I was never alone on this journey. My family, friends, and everyone who prayed for me or sent positive thoughts have been an essential part of my healing. I truly could not have done this without any of you. Thank you, and God bless you all. This journey isn’t over yet, and I’m still discovering what comes next—but I am more hopeful than ever that this is exactly where I need to be, in my health, my life, and this journey forward.