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        <title>KidneyLyfe — KidneyLyfe</title>
        <link>https://www.kidneylyfe.com/</link>
        <pubDate>Mon, 20 Apr 2026 17:35:05 +0000</pubDate>
        <language>en</language>
            <description>KidneyLyfe — KidneyLyfe</description>
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        <title>Navigating the conversation about living donation</title>
        <link>https://www.kidneylyfe.com/discussion/1607/navigating-the-conversation-about-living-donation</link>
        <pubDate>Wed, 15 Apr 2026 15:30:22 +0000</pubDate>
        <category>Kidney</category>
        <dc:creator>Dom</dc:creator>
        <guid isPermaLink="false">1607@/discussions</guid>
        <description><![CDATA[<p>Hello everyone!</p><p>On <strong>Tuesday, April 21st</strong>, we&rsquo;re hosting <strong>&ldquo;Living Donation: How to Start the Conversation and Navigate the Journey.&rdquo;</strong> Maribell Costell, a Living Donor Facilitator, will share tips on how to begin the conversation, what to expect along the way, and how to feel more confident taking the next steps.</p><p>Maribel turned her personal experience as a donor into a passion for helping others and guiding them through the process! We are so excited to have her join us for this webinar. </p><p>Please share this information with others who may benefit and feel free to share your questions before Tuesday! There will also be a live Q&amp;A during the webinar!</p><p>Go to the Education tab and click &quot;webinars&quot; to register :)</p>]]>
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    </item>
    <item>
        <title>A current update</title>
        <link>https://www.kidneylyfe.com/discussion/1605/a-current-update</link>
        <pubDate>Mon, 13 Apr 2026 15:50:16 +0000</pubDate>
        <category>Kidney</category>
        <dc:creator>jdanishevsky</dc:creator>
        <guid isPermaLink="false">1605@/discussions</guid>
        <description><![CDATA[<p>On Friday, April 3, 2026, I began feeling unwell and extremely tired, with a low-grade fever after being a bit under the weather for several days. I called the 24/7 Hackensack nurse line, and after speaking with a doctor, she recommended that I take Tylenol, rest, and drink plenty of fluids.</p><p>Over the weekend, I followed those instructions and spent most of Saturday and Sunday sleeping, as I had very little energy.</p><p>On Monday, April 6, 2026, when I woke up, I felt significantly worse. I had almost no energy, could barely sit up, and needed to lie down even more than during the previous few days. On top of that, my fever spiked very high&mdash;to about 102.7&deg;F (39.4&deg;C) on another thermometer.</p><p>I immediately called my transplant coordinator. She recommended that I go straight to the emergency room and said she would make all the necessary arrangements. Because I felt so weak that I could barely sit in a car&mdash;even if someone else were driving&mdash;we decided to call an ambulance.</p><p>The ambulance arrived, took my vitals, and transported me to Hackensack ER. My biggest fear was that I might be experiencing a serious rejection episode. However, after running several tests&mdash;including blood work, an ultrasound, and a CT scan&mdash;the doctors discovered that I had pneumonia.</p><p>They admitted me to the transplant floor and told me that I would likely stay there for a while. The medical team wanted to determine whether it was respiratory bacterial pneumonia or viral pneumonia, which required waiting for some lab results. Based on my symptoms, the doctor believed it was most likely viral.</p><p>During this experience, I also learned something new about my kidney transplant journey. The doctors temporarily stopped one of my anti-rejection medications, Myfortic, to allow my body to fight the infection more effectively. The medical team explained that pausing the medication for a few days in a severe situation like this is safe, but it should never be skipped casually or simply because I forget to take it.</p><p>This journey continues to teach me something new every single day. Even through moments like this, I&rsquo;m reminded how grateful I am&mdash;for the incredible medical team watching over me and for the strength our bodies have to heal.</p><p>Every step of this transplant journey brings new lessons, challenges, and appreciation for life. I&rsquo;m taking it one step at a time, learning along the way, and feeling truly blessed to keep moving forward. 💙</p>]]>
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    <item>
        <title>Donate Life Month Events</title>
        <link>https://www.kidneylyfe.com/discussion/1606/donate-life-month-events</link>
        <pubDate>Tue, 14 Apr 2026 23:41:38 +0000</pubDate>
        <category>General</category>
        <dc:creator>AliEm14</dc:creator>
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        <description><![CDATA[<p>We&#39;re halfway through April, which means we&#39;re half way through donate life month!</p><p>In our support group tonight, we shared things we&#39;re involved in in our local communities to invite people into the transplant space, from sleeves on coffee mugs to lighting up buildings blue and green to attending specific events that honour our donors.</p><p>I want to know what you&#39;re up to for donate life month. OR if there&#39;s nothing in your area, what do you desire to start?</p>]]>
        </description>
    </item>
    <item>
        <title>Hydration Check In</title>
        <link>https://www.kidneylyfe.com/discussion/1065/hydration-check-in</link>
        <pubDate>Tue, 12 Mar 2024 23:52:33 +0000</pubDate>
        <category>General</category>
        <dc:creator>LaVise0325</dc:creator>
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        <description><![CDATA[<p>How are you doing with drinking water daily? Any suggestions to help others  meet their daily goals.</p>]]>
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    </item>
    <item>
        <title>Transplant readiness</title>
        <link>https://www.kidneylyfe.com/discussion/1604/transplant-readiness</link>
        <pubDate>Fri, 10 Apr 2026 21:49:30 +0000</pubDate>
        <category>General</category>
        <dc:creator>Berriosa1234</dc:creator>
        <guid isPermaLink="false">1604@/discussions</guid>
        <description><![CDATA[<p>Hi Gang, I have a question/statement. As you all waited/or are still waiting for an organ transplant, When you were getting wait listed for your organ transplant, what barriers did you face as you were getting ready to be waitlisted? did you find it easy to go through the process? did you encounter any barriers? did you feel &quot;ready&quot; to start the evaluation process? did all your questions get answered? if there are barriers in your eyes what do you think were the most important barriers that need to be discussed?</p>]]>
        </description>
    </item>
    <item>
        <title>Caregiver Support</title>
        <link>https://www.kidneylyfe.com/discussion/1592/caregiver-support</link>
        <pubDate>Thu, 26 Mar 2026 16:29:31 +0000</pubDate>
        <category>Care Partner</category>
        <dc:creator>AliEm14</dc:creator>
        <guid isPermaLink="false">1592@/discussions</guid>
        <description><![CDATA[<p>If you were in support group yesterday, you know we talked all about caregivers. Shanell and Emmitt shared their journey with us on navigating the caregiver/partner relationship, and I know Shanell has some resources she&#39;ll share for caregiver support but I thought I&#39;d extend it to our broader community too.</p><p>Do you have some resources for support networks for caregivers? What has been your caregiver experience, either as a caregiver or with your caregiver?</p>]]>
        </description>
    </item>
    <item>
        <title>Tips for New CKD Patients</title>
        <link>https://www.kidneylyfe.com/discussion/1532/tips-for-new-ckd-patients</link>
        <pubDate>Thu, 08 Jan 2026 19:45:22 +0000</pubDate>
        <category>Kidney</category>
        <dc:creator>TransplantGr8ness</dc:creator>
        <guid isPermaLink="false">1532@/discussions</guid>
        <description><![CDATA[<p>Hello everybody, </p><p>I&#39;m not sure if this has already been discussed but I was wondering if we could compile our best tips for people new to CKD. What are the most helpful tips in your opinion that you would give to someone who is new to CKD?</p>]]>
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    <item>
        <title>What is your alarm reminder song?</title>
        <link>https://www.kidneylyfe.com/discussion/1598/what-is-your-alarm-reminder-song</link>
        <pubDate>Wed, 01 Apr 2026 18:09:11 +0000</pubDate>
        <category>General</category>
        <dc:creator>AliEm14</dc:creator>
        <guid isPermaLink="false">1598@/discussions</guid>
        <description><![CDATA[<p>We were chatting in our international support group today about remembering to take our meds and what songs we use as our alarm (because why have a boring sound when you can make it fun?)</p><p><a data-username="Jorge_C" data-userid="1786" rel="nofollow" href="https://www.kidneylyfe.com/profile/Jorge_C">@Jorge_C</a> mentioned his song is I will survive, which is a fantastic choice and one I might be stealing. Mine is currently my milkshake brings all the boys to the yard, which might not be the best choice but I needed something catchy enough I wouldn&#39;t tune it out😆</p><p>If you have a fun alarm song, drop it below!</p>]]>
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    </item>
    <item>
        <title>Anyone with a living donor kidney for over 10 years?</title>
        <link>https://www.kidneylyfe.com/discussion/1586/anyone-with-a-living-donor-kidney-for-over-10-years</link>
        <pubDate>Tue, 17 Mar 2026 18:02:21 +0000</pubDate>
        <category>Kidney</category>
        <dc:creator>onlylivingboyinny</dc:creator>
        <guid isPermaLink="false">1586@/discussions</guid>
        <description><![CDATA[<p>In honor of National Kidney Month, our Community Managers are interested in hearing from kidney recipients who received a successful living donor transplant that&#39;s lasted over 10 years. If that&#39;s you, kindly reply below so we can connect!</p>]]>
        </description>
    </item>
    <item>
        <title>National DonateLife 💙💚 Day!!</title>
        <link>https://www.kidneylyfe.com/discussion/1603/national-donatelife-day</link>
        <pubDate>Fri, 10 Apr 2026 16:26:43 +0000</pubDate>
        <category>Donor</category>
        <dc:creator>Sdey0522</dc:creator>
        <guid isPermaLink="false">1603@/discussions</guid>
        <description><![CDATA[<p>As Blue Green Spirit Week winds down, let&#39;s all celebrate National DonateLife 💙💚 day!  Show us your DonateLife colors 👍 </p><p>🌟 Post your 📸 📷 and share your stories in the comments. 🌟 </p><p>I&#39;ll be wearing 💙💚 today in honor of ALL Organ, Eye and Tissue donors. Indeed, they 💙 DonateLife 💚 and are all heroes for saving lives by making the ♻️ Gift of Life  ✅️ possible. </p><p>#beadonor #livingdonors &amp; #organdonors #saveslives #DonateLife #GiftofLife</p><p>💙♻️✅️💚</p><p>#organdonation + #transplantation = #miracles&nbsp;💯</p><p>** The annual Donate Life Blue &amp; Green Day Photo Contest will open for submissions on April 10 and run through April 17. </p><div data-embedjson="{&quot;body&quot;:&quot;Enter the National Donate Life Blue &amp; Green Day Photo Contest for a chance to win a $100 gift card! Community Favorite Leaderboard! Most liked submissions No items liked yet. Learn How to Enter Submit your photos to the National Donate Life Blue &amp; Green Day photo contest from April 10 through 11:59pm ET on […]&quot;,&quot;photoUrl&quot;:&quot;https:\/\/donatelife.net\/wp-content\/uploads\/2024_BlueGreenDay_SocialSquare.png&quot;,&quot;url&quot;:&quot;https:\/\/donatelife.net\/how-you-can-help\/national-observances-celebrations\/blue-green-day\/photo-contest\/&quot;,&quot;embedType&quot;:&quot;link&quot;,&quot;name&quot;:&quot;Photo Contest&quot;}">
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        https://donatelife.net/how-you-can-help/national-observances-celebrations/blue-green-day/photo-contest/
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