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Anyone take Ubrelvy or Ajovy for migraines?
Hi all 👋
Anyone here take Ubrelvy or Ajovy injections for migraines? Any side effects? I am 9.5 years post kidney transplant, and my high blood pressure is managed with medications. I've been seeing a migraine specialist for some time as my migraines have gotten worse over the last 2 years. I take Nurtec but my insurance only allows 8 tablets for 30 days and unfortunately, I end up needing more each month. Insurance also denied me for botox to treat migraines due to the cost, but I did hear that is the safest way to go as it doesn't have any systematic effect on the body or blood pressure. I just got approved for Ajovy injections and waiting to hear what my copay will be but there is a little bit of worry about it affecting my blood pressure. Also waiting to get approved for Ubrelvy which would allow a higher quantity of pills in a 30-day period.
Thanks in advance for any input!
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Hello Friend,
So sorry to hear about your migraines. During my "migraine era" I would try many things to feel better. I felt they always coincided with the weather and my sinuses. One Neuro doc said to add magnesium to my diet which helped, I would take "imitrex" & "sumatripsomething." I discovered "Peace of Mind" peppermint balm from Origins. (I am not receiving any compensation for the shout out :) I get it at Macy's. The combo of peppermint and eucalyptus really helped soothe me on the bad days. You put it on your trigger points and back of your neck/head. It would alleviate my migraine and nausea. Check it out. I have your #, I might follow-up and send you some. It has helped me and my 3 kids who all suffer from migraines. Pre-transplant I would get the visual disturbances (zig zag neon flashing lights in my eyeball) prior to the migraine. I hope you don't have that as well.
Hope you get approved soon for your new medication.
🌻 - Elsa
I had terrible headaches and migraines after transplant. They put me on Metoprolol for BP, Amitrityline for tension, and I do get botox for headaches. Been working well for me.
You are too kind and sweet!!! Thank you for the suggestions!! I will look into it balm! I do take magnesium and used to be on sumatriptan several years ago but I ended up having weird sensations in my arms chest and neck so I had to stop. It worked pretty well while I had it.
With the nurtec and zofran combo I can usually get them under control pretty quickly as long I take it early enough. I now get singular flashing lights but sometime even a day or two before, which I did not realize were early signs that I may get one.
Did your migraines actually get better after transplant?
Thank you for sharing, Tia! How long have you been doing the botox injections? I hope the Ajovy helps and if not, I hope I eventually get approved for the botox. It is just insane to constantly be getting between 8 - 12 migraine headaches a month
That's so unacceptable. I get them every twelve weeks. About two years now.
Dom, YOU JINXED ME! 😎
I do not remember having any migraines after transplant - until TODAY! Ha. ha. It started off as allergies, and this morning my old familiar friend was back. Our California weather is flip-flopping, we even had an early morning earthquake jolt! So, that might explain my migraine. But, "hello my little friend" is back for a visit. I am reaching for my headache balm, then tylenol if needed. I don't have a current migraine pills RX! That is how long it has been. Hope you get your issue resolved soon.
OH NO!!! Taking back all the jinxes lol!! Please let me know how you made out. I hope it did not get too out of hand especially since you don't have a current prescription 😞 I have heard from a couple friends that the weather has been quite crazy and those on the coast had a hurricane this weekend. And earthquakes!? Yikes!
Transplant Patient
Migraines, oddly enough, are my number one sign I have an infection. I can be totally fine otherwise but as soon as we get a migraine, without fail, I have an infection. So I have a pass from my infectious disease team that as soon as I feel a migraine coming on, it's straight to the ER. I used to try to ride it out until we discovered that it actually corresponded to something, and now knowing my migraines are a sign of a deeper dis-ease in my body has changed the game. Knowing that and being able to proactively treat my body as a whole has also decreased the frequency of my migraines, which is really nice.
insurance is so difficult to navigate. I have been denied and appealed and denied and appealed numerous times. I am sorry you struggle with migraines. I never had a headache yet alone migraines before I got sick. 8 months post transplant I had my first migraine. Vomiting/ dry heaving for 5 hours while in a fetal position. No one knows why or what started it. Luckily I have a great team and I was referred to a neurologist that helped. I take Umbrevly PRN. I now get Botox. My migraine protocol is…. First sign I take reglin then umbrely. That usually stops it. I get Botox injections every 3 months and I have Emgality injection once a month. I am not sure why my insurance pays for my meds and not for yours? please keep advocating for yourself and appeal the insurance denials every time. We are here for you Dom.
It really is! Thank you for sharing this with me! I have not heard of Emgality yet. Do you feel like the reoccurrence of migraines has decreased since you started the Botox and Emgality injections?
Having vomiting and the dizziness with migraines is the absolute worse. I have been able to get ahead of it lately with the 8mg dose of zofran but its only if I take it at the first sign of a migraine much like you said. Otherwise, once I get sick it just doesn't stop!!
@AliEm14 Wow! I never thought that it could be a sign of an infection as well! Thanks for sharing that! I have made overall lifestyle changes and am also working on treating my whole body to try and minimize them. I'd say hormones are my one consistent trigger, but I do have many other ones.