I don't know what's worse, waiting for the phone call that they found a liver for you, or knowing there is one and waiting for the scheduled date? It is driving me nuts.

Hope everyone can enjoy the beautiful day,

Andreas

Hope you are all doing well.

I'm 3 1/2 LT, and I am having excruciating joint pain behind my knees, wrists, and body aches.

I just want to check if anybody has experienced the same thing, because it has already been 3 years, and now the pain is really bad.

I'm not sure if this is a side effect of Tacrolimus or if I should check something else.

Thanks

had my Follow Up today and I found out I won’t be meeting with my Surgeon anymore but a Hepatologist I’m familiar with, he supervised my Abdomen getting drained

I met with the same Psychologist again afterwards and told her how I requested to speak with her again while I was admitted but was Denied

She said she heard about that later on but I was discharged…

I have been trying to take a small walk everyday. I want to build some muscle. Any suggestions on different kinds of exercises?

We plan on getting a home health aide. Our insurance stated it’s a covered benefit, the doctor just has to request it. I’m sure our copayment and deductible will be maxed out after the sugery, at that point the ins. covers 100% for the rest of the year.

Why would the coordinator care? We are the ones paying for it.

what has your experience been?

Also looking for opinions on assistive devices for pulling, sitting, and standing up, like a trapeze.

Male, 57, ALD, surprisingly, I wasn't a big drinker, except in my twenties.

Celiac and vitiligo are the autoimmune diseases that I was diagnosed with about 16 years ago. I'm used to sudden, necessary lifestyle changes. -

We, my wife and I, finally called the hospital to schedule my liver transplant for May 2026.

My wife will be my living donor. It has been a struggle for me to agree to that.

There are still so many unanswered questions. I work with my team and therapist. We have a small business that relies on my wife and me to be present and working.

In the last few years, we took up recreational running, and now I've started running in the gym and lifting weights. My doc says I need to lift to maintain muscle. Sometimes I get too competitive and run faster and lift more weight than my doctor would approve of.

I want to be in the best shape I can be again.

I hope recovery will not take more than 3 months before I can return to my desk. My wife gets scared when I speak of potential risks and side effects.

Would love to hear what the real post-transplant life will look like.

Has anyone been able to run again post-transplant and live a (somewhat) normal life?

Thanks for reading this!

I came across this site and noticed it was active so I figured why not?

I’m just taking things day by day processing everything as I recover, I’m new to all this

I was wondering if you had any good book recommendations On post transplant care , I’ve browsed around but haven’t found one that really speaks to me !

I would really appreciate it if you had any good books you’ve read personally

I had a liver transplant , but general post transplant care will do thanks !