KidneyLyfe — KidneyLyfe

Donate Life Month Events

AliEm14 — Tue, 14 Apr 2026 23:41:38 +0000

We're halfway through April, which means we're half way through donate life month!

In our support group tonight, we shared things we're involved in in our local communities to invite people into the transplant space, from sleeves on coffee mugs to lighting up buildings blue and green to attending specific events that honour our donors.

I want to know what you're up to for donate life month. OR if there's nothing in your area, what do you desire to start?

Hydration Check In

LaVise0325 — Tue, 12 Mar 2024 23:52:33 +0000

How are you doing with drinking water daily? Any suggestions to help others meet their daily goals.

Transplant readiness

Berriosa1234 — Fri, 10 Apr 2026 21:49:30 +0000

Hi Gang, I have a question/statement. As you all waited/or are still waiting for an organ transplant, When you were getting wait listed for your organ transplant, what barriers did you face as you were getting ready to be waitlisted? did you find it easy to go through the process? did you encounter any barriers? did you feel "ready" to start the evaluation process? did all your questions get answered? if there are barriers in your eyes what do you think were the most important barriers that need to be discussed?

What is your alarm reminder song?

AliEm14 — Wed, 01 Apr 2026 18:09:11 +0000

We were chatting in our international support group today about remembering to take our meds and what songs we use as our alarm (because why have a boring sound when you can make it fun?)

@Jorge_C mentioned his song is I will survive, which is a fantastic choice and one I might be stealing. Mine is currently my milkshake brings all the boys to the yard, which might not be the best choice but I needed something catchy enough I wouldn't tune it out😆

If you have a fun alarm song, drop it below!

Donate Life Events - share your photos here!

LaVise0325 — Tue, 07 Apr 2026 16:31:50 +0000

It’s Donate Life Month, and even though we’re all in different places, we’re in this together. If you know of any Donate Life events happening near you, vigils, fundraisers, any awareness or flag raising events, please share. Let’s keep the hope going and connect across the globe. Please feel free to share photos from these events in this thread! We would love to use them to share throughout donate life month and perhaps in our monthly newsletter!

1 Year post Kidney Tx

shujaatchohan747 — Sun, 05 Apr 2026 10:25:33 +0000

Beautiful Post Transplant Buddies, what is one thing after transplant that still bothers you or that you are faced with post transplant irrespective of the time, i am 1 year and still not able to properly adjust to life, idk how much more it will take, work, medications, this continous mental confusement and scariness, how do you all deal with it,

for some reason i have been trying to put all this questions into something i am just trying to figure out, would love if you can provide opinions and feelings here.

https://forms.gle/nUrDBW3FCCTc9NjeA

Donate Life Month Messages of Hope

LaVise0325 — Tue, 07 Apr 2026 16:25:35 +0000

As transplant recipients, caregivers, and those waiting, I know our journeys are filled with challenges, but I want you to know that this community is a place of hope. Please share a message, a thought, or a belief that keeps you going. We’re stronger together. To all of you on this journey, remember that every step, every day, is a victory. Your strength inspires me, and your hope reminds me that every new morning is a gift. Keep believing, keep dreaming

Nutrition Reset

LaVise0325 — Wed, 27 Aug 2025 23:22:18 +0000

What’s the biggest change you’ve made in your eating habits since your transplant?

Travel w meds: dosing

Karin — Mon, 19 Jan 2026 14:31:37 +0000

Hi,

I am a frequent traveler and I often even travel across time zones. When I dosed insulin this was very complicated since my long acting insulin really needed 24 hrs between doses and the meal time insulin was used right before eating. It took me a day or so to adjust and it often posed issues. W my transplant meds I try to adjust my schedule as well so I keep my tac levels stable. This means I should dose every 12 hrs and I often do a two day transition moving the dosing a few hrs each day to allow for this cadence yet letting me sleep!

how do you do it?

Bone health

TiaBean — Wed, 01 Apr 2026 20:18:12 +0000

I recently found out I have osteoporosis. Most likely from my medication regime. I am going to try yoga, new medication, and small weight training. Problem with me is I have no hunger or thirst cues. The docs are all stumped. This is frustrating. Anyone have bone issues?